"I owe everything to my Savior, Jesus Christ. He has given me hope and continues to give me a future. I now know after so many trials in my life, that He does listen to me and He will answer my prayers. I no longer have to think about seeking Jesus, He is in my thoughts all day long. My heart knows my Savior’s voice. When He calls me to prayer, I obey. When I ask to sit with Him in counsel, He is always there. If it weren’t for the trials in my life I would never have developed the faith I have today. There is no longer any question, there is no longer the “Why is this happening”, there is only trust because my Father in heaven is always faithful and just."– Liz Dixon

Thursday, February 26, 2009

One More Piece To The Puzzle

As many of you have heard, we received a unofficial diagnosis of Cerebral Palsy for our son Hudson. This really came as no surprise to me, seeing that I have thought this was the case for years. Just based on watching Hudson, my own personal research on Cerebral Palsy and what doctors have said in the past. Granted no one has wanted to label him like that. Maybe thinking it would cause fear in us as parents or just to keep from the worry. Or just plan because no one really fully understands this diagnosis and what it could mean for the child. Seeing that each and every child has different types, and degrees of CP, it can be complicating to diagnose.

The recommended action for a child with Cerebral Palsy can and will vary a great deal as "Cerebral Palsy" is used to diagnose a vast range of problems having to do with brain damage/trauma. We do not know what exactly the future holds, but then who does? All having a Cerebral Palsy diagnosis means is that we now have answers as to why Hudson did and does certain things. It means sometime his brain experienced trauma; in his case it was a grade IV brain bleed a few days after he was born. It means the control he has over his muscles isn't the same as what you and I may have. It means some things are harder for him to do. It means he may need help doing things that others take for granted. There’s no clear cut answer to how this will indeed effect him as he gets older. We do know that Cerebral Palsy never gets worse. You just notice other things with age. After the brain bleed, we were told Hud would prob not survive. And he did! Then later we were told he may never walk, and he walks! Hud is an amazing kid! He’s a handsome, sweet, caring little boy with the greatest smile.

For many, getting a diagnosis may mean the start of some serious life changing things, (possibly among them Occupational, Speech, Physical, Surgery, Medications, etc.) In his case he has already been receiving occupational, speech and physical therapy since birth, and has had heal toe cord surgery as well. We are doing everything we can to get him the help and or assistance that he needs to be the wonderful boy that he is. We will see what is to come. I can only see a bright future ahead of him. We can only live each day to the fullest, and keep track of anything that is out of the ordinary. We also need to be the best parent advocates we can be; our children need us. Talk with each other and share our stories. We will get through this. We just have to stay strong and be there for each other.

"God only gives us things he knows we can cope with. We may stumble and fall but we will get there in the end"

4 comments:

Following Him said...

Sounds like a great piece to find. Granted CP is not great, but if the doctors now know, they can treat him better and allow for the juices to help him succeed be there.
~Elyse~

Amy E. said...

Hey Liz...glad that you guys are one step further in the right direction. I know in the coming days you will here a thousand stories, examples, advices, etc regarding CP...and I know that CP has a wide range of how it can be.

I just have to tell you..in the 12 years of teaching high school..one of my most inspirational and impressive kids...is a young man with CP. He is a great kid and his CP is limited really to just one arm...but man o man is he a typical teenager. I won't soon forget him and oh yeah...I teach American Sign Language and he just trucked along with the rest of us.

I have a feeling that your little guy...will be the same. Especially having the parents he does.

Amy said...

Thanks for the birthday wishes! Funny that you mentioned cheesecake, because this year I asked for a cheesecake for the first time ever (I'm usually a chocolate cake girl). Anyway, the birthday celebration was a nice break in the middle of the Never-Ending Ear Infections of Doom ;-)
Hope your little ones are over their illnesses and that your week is going well! We oughtta do lunch sometime, I'd love to catch up with you.

Zanna Grace said...

Liz, You are the bravest woman I know. Hudson could not be more blessed to have such a loving and hopeful mommy. I see a bright future for all of your little ones too. Our prayers continue to remain with you each day. Zanna cannot wait to meet her cousins. We'll be home March 31-April 5, if it's possible to come over, I would love to.
Love you so much.
-Sarah